You aren't a faker or an imposter if you don't want to or simply can't get a diagnosis; you're as valid as an officially diagnosed autistic. This is so important to keep in mind! I had a private diagnosis from a … No one has really told us; its us telling the professionals. They write, “Once they diagnose the autism officially, they can give him medications to help with the … But we can't tell you whether or not you should get a diagnosis, or if it's worth it. But part of me feels like I am an imposter because I haven't been officially diagnosed. Why I don't run around half naked to attract a partner. I am a bot, and this action was performed automatically. Do you want it to be official? If I'm honest it barely affects my day-to-day life. It has completely changed the way i look at myself. It’s an interesting question, Tyron, and I honestly don’t know the answer; I think seeing your GP is an essential first step, though, because you would have to have a referral for this. Email. Well, a lot of neurodivergent folk feel a connection to other disorders even if they don't have it. TL;DR: users who are asking if it's worth it to get a diagnosis, know that no one had the answer except for you. Like when I'm 'rude' to strangers. Is a diagnosis worth the time and money in this situation? Jenna, if you read the article, there is a section of it that says “Assessments”. 1. I am pretty sure I am too, but I don't know if it is worth it to get diagnosed as an adult. 1. She said it would take years and since I'm high functioning I just would get my autism badge and a pat on the back. Also learn about the use of BERA audiometry, EEG, MRI scan etc. Autism news, information and support. If you're finding it hard to get an assessment, you could: ask to speak to someone else, like another GP – this is called getting a second opinion Close. You can either try to work on the imposter syndrome with self help, therapy, mindfulness meditation, etc., or pursue a diagnosis. Keep your head up and walk proudly whether you have a professional or self diagnosis. After doing a little research and looking at diagnostic criteria, I'm about 80% sure I'm autistic. Now as my 35 th birthday and my one year anniversary of my diagnosis approaches, I could not be any happier with whom I am. For me it was definitely worth the wait time, to get my diagnosis, but everyones circumstances are different. I get your point, but I I think you're missing out some of the reasons why people ask this question. on this sub recently. There are other reasons why a sizable percentage of toddlers get erroneously diagnosed with autism spectrum disorder. My dilemma now is, is it worth getting diagnosed as an adult? So I've been wondering lately if I'm autistic and wondering if it's worth getting tested. This began when I came across a bunch of articles on r/HSP about autism in females. Nothing has made more sense in my 30+ years than learning about autism, nothing even comes close. So in conclusion, unless there's an actual serious reason why a diagnosis would hinder you (perhaps different countries have different rules that affect you negatively if you were diagnosed), it's always worth it to get diagnosed, for the peace of mind if nothing else. Its kind of like when you say to a friend going out to eat....you can pick the place I don’t care where we go. It helped me a lot with my mental taste and my self-hatred. Fort Worth Texas physician directory -Read about autism screening and diagnosis, including developmental screening and comprehensive diagnostic evaluation. Yeah, those are valid reasons and I believe I covered that somewhere above but I haven't quite woken up yet so I'm not going to try and find it now. My life is pretty great. Without others ideas or insights then it can be very hard for me to know what to do. All posts get this message. Posted by just now. If it turns out I'm not autistic, how do I reconcile that with the connection I feel towards the autistic community? Is it worth it to get diagnosed as an adult? In contrast her son is legally disabled because of the autism and they receive benefits, he goes to a special school etc. I've started talking about this with some of my friends and family. Again, such services – and the requirements for providing them – can vary depending on where you live and what kind of services your health plan provides. I am torn. Greetings Earthlings! Not getting a diagnosis is just as valid as getting one, even if not everyone sees it that way. I know I have trauma and sensory issues (my therapist confirmed this too) but I would definitely be able to accept myself more with a diagnosis. This is a friendly reminder to read our rules in the sidebar if you have not already. While you're absolutely right and what you say should be considered as part of the answer, if one digs a little further on these subjects the fact that this community is truly inclusive and professionals are not all really that understanding and supporting, makes it a little scary to go out there and expose oneself. Kids who were diagnosed with autism can be rediagnosed with personality disorder as adults. Fortune Business Insights has published a premium research report on, titled “Autism Disorder and Treatment Market Size, Share and Global Trend … What are the clinical assessment tools like CARS and ISAA for autism screening? I wouldn't want to give anyone the opportunity to excuse controversial things that I've said, since "you know, she's autistic". Often times in my ASD head I can’t process unless i know what others think about it. This means 9 percent of the children originally diagnosed with autism got that diagnosis changed. ... help Reddit App Reddit coins Reddit premium Reddit gifts. I'm pretty happy with the way things are. You can always ask for a second opinion - there is a proper procedure for doing that, ask if you want some pointers. I see your point, though! . To be honest, I feel a bit like an imposter talking about this since I was diagnosed at 3, but I've been with my sister and brother through their processes and I know it's not always easy for a professional to accept that autism isn't a one-size-fits-all thing. This week after reading that British comedian Johnathan Ross’s daughter received an autism diagnosis late in life, I thought I’d write about my own experience of receiving an autism diagnosis as an adult.. As you may know from my blog intro, I was diagnosed with Asperger’s Syndrome a few weeks shy of my 24th birthday. Early diagnosis of autism helps children get the treatment they need. There's every chance your diagnosis may have changed too. Go ahead! Your last paragraph makes an excellent point, and that's something people seeking a diagnosis need to know, too; are they willing (and more importantly, do they want) to spend thousands of dollars and go through multiple psychologists just to get what they want and need? Is it worth it to start turning stones until we find that professional? There is a book written by his mother, about a boy named Tony, who was diagnosed as autistic, and his behavior was very difficult to manage. But no one, and I mean absolutely no one can tell you what you should do when it comes to getting diagnosed. I'm not trying to bring drama here, but I think a lot of people coming here in search of an answer to the "is it worth it?" Sorry for bothering you but what do you mean by 'what kind of limbo is that??'? Note: Individuals with a well-established DSM-IV diagnosis of autistic disorder, Asperger’s disorder, or pervasive developmental disorder not otherwise specified should be given the diagnosis of autism spectrum disorder. My issue when i see these questions are OH KNOW please please be sure you find someone that understands ASD. Considered by many to be one of the most inspirational advocates and supporters of those with Asperger’s, Autism and ASD (especially girls and women), Alis discusses here the benefits of seeking out a diagnosis So maybe ask yourself, what would it change if you got an official diagnosis? I am a bot, and this action was performed automatically. I am at a similar point in life. I'm torn between getting it to prove to my family that I'm not trying to be complicated or do it for the attention, and not wanting to give them an excuse they can use when I don't act the way they want me to. You make some great points that I haven't thought of! Hi, I am a 20 year old woman and I just recently started to seriously consider that I might be autistic. Below that is how you go about getting a diagnosis – Assessment for Autism Diagnosis. I do have trouble coping with certain emotions and can have meltdowns over silly things from time to time (not very often though). A lot of y'all posting have recently had a child diagnosed, or had a counselor/therapist suggest it. Many other Reddit users share their advice and comfort the troubled father. This is me!". If someone is a hair or two short of meeting all the criteria for the diagnosis, what kind of limbo is that?? What could be a possible outcome if people learn about it who don't have your best interest in mind? One particular issue I am worrying about is my problems with speaking and communicating. If you don't need any of that, then maybe it's not right for you? - Autism Diagnosis - How is Autism Diagnosed? I tried to talk to my parents about this, but they are both against going to a psychologist and possibly getting a diagnosis. I still have dark thoughts sometimes, but very less often than ever before because I know for a fact that I'm neurologically deficient in a perfect, fully functional body. It gives a whole new complexion to my decision to be “out” about autism in these blogs (though of course getting a diagnosis and being out are usually two different things- the driving issue is the only thing I know of where declaration is compulsory). Which blood tests and genetic tests are used for diagnosing autism spectrum disorder? If you go for a private diagnosis you won't necessarily get a diagnosis - they may say the same as the people you have already seen. Even those professionals that note ASD specializations on their websites are speaking about people with higher needs and they don’t truly understand the complexity of this issue. Why I'm not 'nicer'. “Autism is a spectrum. question would like and possibly need to hear this. Vote. I don't need that right now in my life, however, I do think that my answer to this question would have been way different at an earlier point in my life, when I was younger, more insecure, confused, in need of explanations. I don't go around screaming it from the rooftops, but my family and fiance all agreed when I talked to them about it and they said it makes so much sense. The fact that you're worried about being valid proves that. You can either try to work on the imposter syndrome with self help, therapy, mindfulness meditation, etc., or pursue a diagnosis. It is for some the most mindblowing discovery about their true self, seeking diagnosis could be one of the most important steps to self acceptance and liberation. So if you feel it would benefit you, then yes, by all means get yourself an assessment. In some cases (typically females and minorities) it's difficult to get a psychologist who is even somewhat aware of autism in something other than cis white boys. But you don’t need one. Depending on the type of eval you get, you might be diagnosed with a neurodivergency, or you might be pointed in another direction. A few of my thoughts on why we see this question asked a lot. I still get frustrated on little things I feel I shouldn’t do and my sensory sensitivity, but I am learning how to live as a female on the autism spectrum. Everything in my life clicked when I figured it out. A formal diagnosis is done by a psychologist, psychiatrist, or neuropsychologist who does adult ASD assessments. You are valid. I think its very sweet of you to write this; it shows you care. How is autism diagnosed in children and in adults? Then, at age 28, I was diagnosed with autism spectrum disorder (ASD). Also I think ASD is very confusing to those even on the spectrum. I've got nothing to prove. But I can only imagine how much better my life would have been if I had been diagnosed as a child and had the chance to understand myself at a younger age. Hey /u/imjustfinethankx, thank you for your post at r/autism. The choice is yours and yours alone. I am a stay at home mom right now, but plan on going back to school and getting a career once they both are in school. I've noticed a lot of the people who asks the "is it worth it" question are able to get a diagnosis, and know they likely will be diagnosed with ASD; I suppose as I was writing this I thought mostly of those people who are more wondering if it's worth it for accomodations or simply just to know. Autism may be a … Typical to strong verbal language skills and intellectual ability distinguish Asperger syndrome from other types of autism. There are not many trained professionals that understand the details of being on the spectrum. I feel like my case is ambiguous enough that an evaluation would be helpful. 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